Day 79 of my freedom from topical steroids!
In my last post I talked about my trip around Europe and how it affected my skin.
For the two weeks after my holidays I experienced very poor energy levels and sleep, with dry skin and a very poor outlook on the whole ideal. As the days went by my energy improved as well as my sleep, and I attribute this to improving my adrenal function. I supplemented vits B,C,D omega 3 and 6 and probiotics. I was going through the first few weeks of MW and did not enjoy looking in the mirror!
On the 25th of August I left to travel Thailand and Australia for 7 weeks with a heavy apprehension for the condition of my skin and general health on the inside. However to surprise my general well being has dramatically improved. I took the first 2 weeks of Thailand very easy and both my energy levels and colour of my skin are much better! Sun and sea are a great cure for health! 80% of my skin is in reasonable condition, but still suffer from itchy rashes on my wrists, elbows, neck and backs and inside of my legs. The rest is still off colour but has actually turned whiter than the normal skin around it! I'm much more positive about TSW and have become a lot more confident with the way I look and I think the whole ordeal will have a huge positive boost to my general persona in the long run.
From the 6th of September I enjoyed a few nights out including the infamous full moon party! I had a nasty scratched part on my wrist which turned nasty and infected with yellow pus etc. I decided to go see a doctor as I felt dizzy and out of whack and he informed me that I had a bacterial infection. White blood count was above 12000 and they kept me for 36 hours with a course of antibiotics...
Currently sat on the hospital bed writing this!
I've learned a lot about how my skin heals over the past few weeks and it seems my body is very efficient at recovering so I'm doing my best to avoid scratching. I feel that if I can stop creating new wounds my skin will be in much much better condition in a few weeks. Keeping my diet and supplements as natural as possible helps control the flares but I think the main benefactor has been chilling out, enjoying the sun, getting in the sea and being as positive as possible! Liquorice has helped with sleep and exercising and keeping busy means that my mind is off my skin and I'm not scratching!
I'm looking forward to this ordeal finishing and am going to attack the next four weeks in Australia with a positive outlook and I'll update you guys on how it all went in a month!
Peace x
Wednesday, 10 September 2014
Friday, 15 August 2014
Day 52 - Topcial Steroid Withdrawal - Moisturiser Withdrawal
Hi guys
Its been a while since I last posted so i'm breaking this post into three as I have a lot to say in the way of news and goings on...
First of all, about 5 and half weeks into my TSW recovery I felt strong enough to undergo moisturiser withdrawal. I've used heavy moisturisers for around 5 years. as well as the steroids, so was naturally apprehensive. When I say 5 years, that's after every shower and when I woke up in the morning/ went to bed.
Originally, for the first 2-3 days my whole body was fairly dry and flaky, however nothing too serious, and to my surprise every where except for my neck upwards became a lot stronger and stopped flaking after around five days.
My face remained very flaky and dry which is annoying as its the area thats most on show, but hey ho!
I'd seen a lot of people taking Dead Sea Salt baths so gave this a go on day 5 in the hope that it would toughen up my skin. However that night I literally went to town on my skin and awoke in the morning with the majority of my upper torso covered in scratches and dried blood. NOT GOOD! My scratches made me look like I'd been the victim of mugging by a bunch of cats.
Around a week into MW, I took a 4 day trip to Spain with some friends ( as you can see from the photo
) and the combination of a few beers, the air con on the plane, sea salt and sun really hit me hard and my skin went very dry and rough all over. I purposefully didnt pack any moisturiser so that I couldnt cave which I fully regretted! I did my best to avoid the sun and sun creams however I got to the stage where I couldnt hack it any longer so used olive oil to give my skin a mini break.The sea salt did help to quickly heal the scratches but my skin felt parched!
On return from the holiday I quickly found that any moisturising cream on my skin would result in an instant flare and itching, so since returning I have sucked up the pain and remained moisturiser free for the past 2 1/2 week. I've seen small improvements, but for some reason at around 2 weeks I tempted another sea salt bath which parched my skin terribly. I still feel as if I'm recovering from that now.
One thing I have noticed is that when I dry after a shower my skin goes all shiny and develops i think film which my makes my skin less sensitive. Not sure what this is, but it seems like my skin is slowly remembering how to look after itself so I will be keeping a close eye on that! Oh and I as a positive, During MW I haven't looked that red or flared up... just very dried out!
Couple of photos.. bit higgly piggly but here you go! Next blog is about Adrenal Fatigue...
Again feel free to drop a message with any questions or advice!
Jonny xx
Its been a while since I last posted so i'm breaking this post into three as I have a lot to say in the way of news and goings on...
First of all, about 5 and half weeks into my TSW recovery I felt strong enough to undergo moisturiser withdrawal. I've used heavy moisturisers for around 5 years. as well as the steroids, so was naturally apprehensive. When I say 5 years, that's after every shower and when I woke up in the morning/ went to bed.
Originally, for the first 2-3 days my whole body was fairly dry and flaky, however nothing too serious, and to my surprise every where except for my neck upwards became a lot stronger and stopped flaking after around five days.
My face remained very flaky and dry which is annoying as its the area thats most on show, but hey ho!
I'd seen a lot of people taking Dead Sea Salt baths so gave this a go on day 5 in the hope that it would toughen up my skin. However that night I literally went to town on my skin and awoke in the morning with the majority of my upper torso covered in scratches and dried blood. NOT GOOD! My scratches made me look like I'd been the victim of mugging by a bunch of cats.
Around a week into MW, I took a 4 day trip to Spain with some friends ( as you can see from the photo
) and the combination of a few beers, the air con on the plane, sea salt and sun really hit me hard and my skin went very dry and rough all over. I purposefully didnt pack any moisturiser so that I couldnt cave which I fully regretted! I did my best to avoid the sun and sun creams however I got to the stage where I couldnt hack it any longer so used olive oil to give my skin a mini break.The sea salt did help to quickly heal the scratches but my skin felt parched!
On return from the holiday I quickly found that any moisturising cream on my skin would result in an instant flare and itching, so since returning I have sucked up the pain and remained moisturiser free for the past 2 1/2 week. I've seen small improvements, but for some reason at around 2 weeks I tempted another sea salt bath which parched my skin terribly. I still feel as if I'm recovering from that now.
One thing I have noticed is that when I dry after a shower my skin goes all shiny and develops i think film which my makes my skin less sensitive. Not sure what this is, but it seems like my skin is slowly remembering how to look after itself so I will be keeping a close eye on that! Oh and I as a positive, During MW I haven't looked that red or flared up... just very dried out!
Couple of photos.. bit higgly piggly but here you go! Next blog is about Adrenal Fatigue...
Again feel free to drop a message with any questions or advice!
Jonny xx
Day 52 - dry skin on face ( 2 1/2 weeks of MW)
Day 52 - dry arm and neck rolls from swelling
Day 52 - Neck
Skin off one leg...
Day 4 of MW - looked normal... want that back!
Day 4 of MW
Day 4 of MW - red inner thigh and calf... hard to see on photo
First day of holiday around Europe ( week 1of TSW) - (middle)
End of Europe (week 4 of TSW) - a lot redder (far left)
Tuesday, 29 July 2014
Day 35 - Post traveling review and skin condition
Traveling with TSW
The best way to describe the previous 3 weeks of traveling Europe with TSW would be peaks and troughs. The traveling aspect, partying and sightseeing was awesome, and I shared the experience with a few really good mates who made the trip that much more enjoyable. However, my whole body rash did wreak havoc with my confidence (which usually borders arrogant) but luckily the guy I traveled with was very understanding and patient and was always picking me up telling me my skin wasn't that noticeable.
Just prior to leaving for the holiday, myself and a few others went on a night out which resulted in a terrible flare up the next day, the worst I'd had to date! Having my skin in such disarray the day before I left made me very nervous and it took the first few days of the holiday to come out of the shell I had decided to put myself in!
The weeks building up to the travels I ate a very clean diet however I spent most of the holiday eating and drinking what I wanted. At the start, in Budapest, I did my best to eat healthy food but was drinking waaaay too much alcohol and soon gave up on the idea of being healthy and chewed on everything I could get my hands on and afford! My skin had bad days over the first week and weirdly seemed to improve when I had had a few to drink, but moving into the second week, when we were located in Split and Dubrovnik in Croatia, the rash started to clear up and become very flakey. I'm guessing this was to do with being in the sun, by the coast and sea, and consuming healthier food in the form of fish and olive oil by the bucket!
The 4 days spent in Mykonos were greeted with very pasty but fairly rash free skin, which boosted my morale by a ton! Especially considering I was strolling around in swim shorts for most of the day. I did my best to protect my skin from the sun, and much to my friend's amusement, lathered on sensitive 50+ sunscreen protection and hid in the shade. Chlorine water dried me out terribly so slyly stuck to swimming in the sea which only seemed to benefit my skin!
Moving onto Ios, my skin stayed in fairly good nick, with the odd rash braking out after alcohol or too much time cooking in the sun. I could tell a flare was on the horizon and it hit just after Santorini and conveniently took full form when clothes were required in Athens. The Acropolis is an incredible site but its safe to say i've felt better than I did walking around in 38C with a massive whole body rash with a slight hangover.
Home Time
Post holiday the rash in a state of flare but good food and sleep are calming it down rapidly and today (2nd day back) the rash is already a lot better.
In order to deal with my skin whilst traveling, I took each day one at a time and told myself to get through the bad skin days the best I could and that tomorrow is a different day. Of course, I enjoyed every minute of the traveling aspect, but I'm sure many other TSW sufferers will sympathise with me when I say that sometimes its impossible to think about anything else but my skin. The travels have definitely taught me to care less about what people think and to not stress out when flares occur. The beautiful thing about traveling is that its very unlikely that I will see any of the people that I caught staring at my legs and arms again, so why should I care!
On top of this, I'm now 5 weeks (35 days) into being free of topical steroids and, although the rash is covering most of my body, I feel a lot better about the ordeal and glad I'm finally on the (hopefuly not too long) road to recovery!
The best way to describe the previous 3 weeks of traveling Europe with TSW would be peaks and troughs. The traveling aspect, partying and sightseeing was awesome, and I shared the experience with a few really good mates who made the trip that much more enjoyable. However, my whole body rash did wreak havoc with my confidence (which usually borders arrogant) but luckily the guy I traveled with was very understanding and patient and was always picking me up telling me my skin wasn't that noticeable.
Just prior to leaving for the holiday, myself and a few others went on a night out which resulted in a terrible flare up the next day, the worst I'd had to date! Having my skin in such disarray the day before I left made me very nervous and it took the first few days of the holiday to come out of the shell I had decided to put myself in!
The weeks building up to the travels I ate a very clean diet however I spent most of the holiday eating and drinking what I wanted. At the start, in Budapest, I did my best to eat healthy food but was drinking waaaay too much alcohol and soon gave up on the idea of being healthy and chewed on everything I could get my hands on and afford! My skin had bad days over the first week and weirdly seemed to improve when I had had a few to drink, but moving into the second week, when we were located in Split and Dubrovnik in Croatia, the rash started to clear up and become very flakey. I'm guessing this was to do with being in the sun, by the coast and sea, and consuming healthier food in the form of fish and olive oil by the bucket!
The 4 days spent in Mykonos were greeted with very pasty but fairly rash free skin, which boosted my morale by a ton! Especially considering I was strolling around in swim shorts for most of the day. I did my best to protect my skin from the sun, and much to my friend's amusement, lathered on sensitive 50+ sunscreen protection and hid in the shade. Chlorine water dried me out terribly so slyly stuck to swimming in the sea which only seemed to benefit my skin!
Moving onto Ios, my skin stayed in fairly good nick, with the odd rash braking out after alcohol or too much time cooking in the sun. I could tell a flare was on the horizon and it hit just after Santorini and conveniently took full form when clothes were required in Athens. The Acropolis is an incredible site but its safe to say i've felt better than I did walking around in 38C with a massive whole body rash with a slight hangover.
Home Time
Post holiday the rash in a state of flare but good food and sleep are calming it down rapidly and today (2nd day back) the rash is already a lot better.
In order to deal with my skin whilst traveling, I took each day one at a time and told myself to get through the bad skin days the best I could and that tomorrow is a different day. Of course, I enjoyed every minute of the traveling aspect, but I'm sure many other TSW sufferers will sympathise with me when I say that sometimes its impossible to think about anything else but my skin. The travels have definitely taught me to care less about what people think and to not stress out when flares occur. The beautiful thing about traveling is that its very unlikely that I will see any of the people that I caught staring at my legs and arms again, so why should I care!
On top of this, I'm now 5 weeks (35 days) into being free of topical steroids and, although the rash is covering most of my body, I feel a lot better about the ordeal and glad I'm finally on the (hopefuly not too long) road to recovery!
Monday, 28 July 2014
Skin blog 1 - topical steroid withdrawal aged 22
Blog entry 1
I've decided to keep a blog about the condition of my skin whilst experiencing topical steriod withdrawal (or topical steriod addiction) so that anyone experiencing similar dermatological problems can relate to the issue and so that I can track any progressions/regressions made. Hopefully this information will help other people get to the root of their skin woes a lot quicker than it took me!
When and Why TSW Started
I've always had excema growing up as a kid. I'm 99% sure that it was due to a couple of allergies that I have to egg, apples, cherries, horses. The excema itself was only in my elbow crease and behind my legs so nothing too serious but the doctors prescribed topical steroids which cleared the issue up temporarily, only to return after eating a food I didn't agree with and then the steriod cycle would begin.
I used heavy doses of antibiotics during a period when I was 8 years old which I believe may have damaged my gut lining making me more susceptive to allergies. I had a nasty reaction to using an antibiotic after a trip to the dentist around 2 years ago which gave me a whole body rash. The doctor prescribed prednisolone (Correct spelling?) which cleared the rash. Prednisolone is a fairly potent oral steriod. From then on my skin has never really been right, with fluctuations between normal and poor depending on the use of topical and oral steroids.
In hindsight, the cycle of using steroids on a rash, the rash clearing, then returning with a vengeance and appearing more widespread is an obvious pattern which led to topical steriod addiction and dependence. However, during the year that I suffered with this issue I attributed the cause to multiple areas including:
~Allergies
~Food intolerances
~Deficiencies in my diet
~Using detergents/shower gels/colognes that affected my skin
~Drinking too much
~Leaky gut
Due to these beliefs, I cut out dairy, gluten, sugar (mostly... bar fresh fruit), stopped using any shower gel, deodorant, shampoos etc, took multiple trips to the doctor and dermatologist who prescribed moisturiser, atarax (a skin antihistamine), oral and topical steroids and finally cleaned up my diet and reigned in the drinking. But none of this helped!
Over the first three to 6 months of the diet I lost a stone (@ 6ft 2 and 76kg I'm looking pretty skinny!) and still had a nasty rash on elbows, knees, neck and unusually on my wrists but stopped abruptly at the palm. Summer 2014 was coming around and I had plans to travel the world, yet still had no cure for my bloody skin and I was starting to get highly frustrated so took more trips to the doc for allergy testing and took food intolerance tests. The results came back with a wide spread list of foods to avoid so I then started an elimination diet as I believed I had a leaky gut. The rash still fluctuated between okay-ish skin to a widespread rash that would flare at any time with seemingly no correlation to a set food.
Cruising ever closer to travelling, I forked out for some time with a nutritionist. This is where I first made my breakthrough. She once again tested for intolerances with a chaos set of results from coffee to pork and chicken (foods I had previously had no issues with!). She also believed I had a leaky gut, but gave me very useful advice regarding the use of prescribed steroids, atarax etc that I was using. She noted that my body was in a state of bad inflammation and encouraged me to stop using the drugs that are meant to clear a problem for good, instead of using them in cycles. She believed that the drugs were putting a big strain on my bodies immune system which was desperately trying to heal itself and has caused my system to become hyper sensitive. She advised a more natural route using probiotics and prebiotics as well as supplementing minerals, vitamins and omega 3. She also noted that the problem may get worse before it got better as the body will clear the toxins through any means necessary, and with the skin being the biggest organ, I expected it to take the brunt!
Discovering The Issue
In essence I believe she was 99% there. Later that week I discovered people online were having issues withdrawing from topical steriod use and looked into the problem further. Www.itsan.org provided me with information on the condition Topical Steriod Withdrawl (TSW) which I matched a lot of my symptoms too... Weird food intolerances, unexplained flare ups, red skin that stopped at the wrist. Despite the healing process taking a lot of time, I was very happy to have finally identified my issue!
Perfectly timed before I went away on holiday... At least I now know!
Check the next blog post for TSW info, and how I'm currently dealing with it whilst travelling!
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